About the National Organization for Rare Disorders
(NORD) Established in 1983, the National Organization for Rare Disorders
Saltonstall, president and CEO of the National Organization for Rare Disorders
, commented Through this collaboration, FMC and NORD will offer a broad range of interactive resources that shorten the time to diagnosis and promote optimal treatment and management strategies for all people with rare diseases.
The initiative drew praise from some, including Abbey Meyers, president of the National Organization for Rare Disorders
and a former National Institutes of Health gene therapy adviser.
Suite 335 Minneapolis, MN 55414 (612) 623-8115 (Voice) American Speech-Language-Hearing Association (ASHA) 10801 Rockville Pike Rockville, MD 20852 (301) 638-8255 (Voice/TDD/TT) (800) 638-8255 (Toll free) National Organization for Rare Disorders
Infants with the genetic defect "lie on the floor, unable to move," says Abbey Meyers, director of the National Organization for Rare Disorders
Summit Association Partners include the Massachusetts Biotechnology Council, Healthcare Information and Management Systems Society (HIMSS), National Organization for Rare Disorders
(NORD), Network for Excellence in Health Innovation (NEHI), The Institute for Pediatric Innovation, The Institute for Healthcare Improvement (IHI), The Massachusetts Medical Device Industry Council (MassMEDIC) and Mass Technology Leadership Council (MassTLC).
NASDAQ: NPSP), a biopharmaceutical company pioneering and delivering therapies that transform the lives of patients with rare diseases worldwide, is joining the National Organization for Rare Disorders
(NORD) and other organizations around the world today to observe World Rare Disease Day.
In 2011, Orphan Europe received the Corporate Award from the National Organization for Rare Disorders
(NORD) for the development of a therapeutic agent for the treatment of NAGS deficiency in the United States.
If our people fred no alternative resources, they suggest the Patient Assistance Program for Copaxone, run by National Organization for Rare Disorders
The FDA would never sit still if the maker of an over-the-counter or prescription drug were to use a similar mix of anecdotal endorsements and pseudo-science to sell its product," said Abbey Meyers of the National Organization for Rare Disorders
(NORD) at a recent FDA hearing.
28, 2015 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders
(NORD) has published a Physician Guide to Nontuberculous Mycobacterial Lung Disease to promote awareness of this rare disorder among physicians and other medical professionals.
Speakers: Luc Dochez, Chief Business Officer, Prosensa, Pamela Gavin, Senior Vice President, National Organization for Rare Disorders
, and Lu Wang, PhD, Program Director, National Human Genome Research Institute, National Institutes of Health (NIH)