The
Cystic Fibrosis Foundation is the world's leader in the search for a cure for
cystic fibrosis.
Various treatments exist to fight
cystic fibrosis, including the correction of the
cystic fibrosis gene.
The
Cystic Fibrosis Trust says the drug has been shown to improve lung health by up to 42% and reduce hospitalisations by 61%.
The atopy rates are higher in
cystic fibrosis cases than in normal populations.
While conventional
cystic fibrosis treatments target the symptoms, precision medicines such as Orkambi tackle the underlying genetic defects that cause the condition.
However it is not available to the majority of
cystic fibrosis patients because the drug is not considered cost-effective by NICE.
Rhian, along with
Cystic Fibrosis Trust Public Affairs Officer for Wales Grace Paget, will hand the petition over to the chair of the Assembly Petitions Committee.
"We would urge government to hear our call and enable people with
cystic fibrosis to live their lives to the full.
The event will feature a live band, raffle, auction and a sponsored wax with all money raised going to the
Cystic Fibrosis Trust.
Cystic fibrosis causes the lungs to become clogged with thick sticky mucus, as well as leading to a shorter-than-average life expectancy.
Cardiff University researchers say they have discovered a new and much faster way of diagnosing lung problems in
cystic fibrosis patients which will give them a better chance of recovery.