Joanne had inherited a rare and incurable genetic disease called Morquio's Syndrome
Despite having a progressive degenerative condition called Morquio's Syndrome
, Kevin is bright and surprisingly fearless.
Kevin, played by Kieran Culkin, younger brother of Macauley, was born with Morquio's Syndrome
, a terminal illness which stops the body's growth.
was also considered because it often has many of the same features.
Danny Woodhouse, 16, was born with Morquio's Syndrome
, which means his internal organs continue to grow but his skeleton doesn't.
Nursery nurse Julie, and husband Paul, 36, a factory manager, knew nothing of Morquio's syndrome
and were stunned when first Jack and then Lewis were diagnosed.
SUPERSTAR: Our stories on Dan as a child of courage in 2001, above, and appealing for a new wheelchair in 2003 HAPPY BIRTHDAY: Morquio's Syndrome
sufferer Dan Woodhouse, pictured above with his mum Sue, is celebrating his 21st birthday today
A genetic defect has been identified in the N-acetyl-galactosamine-6-sulphate sulphatase (GALNS gene) in Morquio's syndrome
type IVA or beta-galactosidase (GLB1 gene) in Morquio's syndrome